February News and Happenings from INGID

Friday, 17 February, 2017

Dear members
February is already upon us and I am sure you have already started planning your activities for the year. One of the dates that are particularly important for primary immunodeficiency patients and carers is
PI Week 22nd – 29th April
PI week is crucial in :
Raising awareness, diagnosis and treatment of PI together
World PI Week is a global campaign which aims to raise awareness and improve diagnosis and treatment of primary immunodeficiencies (PI).
For those of you who are not aware of world PI week, please visit the website: http://www.worldpiweek.org/home
There are excellent resources there for everyone.
Are you planning an event and want to promote it – please do so on the website.
Do you want to do something but not sure what – there are lots of resources and ideas available; from big ideas to very small. Everything counts.
There are also resources available in different languages, German, Farsi, Norwegian, and Spanish to name a few: http://www.worldpiweek.org/resources/local-resources
If you and your hospital/ward/clinic are planning anything please let us at INGID know. It is a great way to encourage other members as well. Please e mail INGID’s web manager or other board member with details.

Amendment working group
Within the INGID community, a working group is being set up to address the complexities and issue of membership. This was raised at the general meeting in Barcelona. We are growing monthly, so it is important the INGID board manage the organisation so its members will benefit. Watch this space….

All comments welcome
If you have any comments about the website, or any suggestions about INGID activities please get in touch either via the website or you can email any member of the board directly. We look forward to hearing from you. Do you have any events coming up in your country – please email us. Let other members know what is going on around the world.

Share your expertise and/ or questions with other INGID members
Do you have a clinical question that you would like to ask a colleague? One of the great benefits of being in touch with other Immunology nurses is being able to reach out and ask others to share their knowledge and experience. All questions and answers are welcome!

INGID Calendar
Looking at the calendar for INGID: http://ingid.org/events/ It is going to be a busy few months for the INGID board. There are events in USA, IRAN and Zambia. If any of our members are attending these events please find the INGID stand and support our hard working board members. We would be delighted to hear what you thought about the events and if there were any good topics for our next conference in 2018.
We look forward to any and all your feedback: communications@ingid.org

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