Friday, 11 March, 2016

We have new interesting questions on the forum section.

We need our members from around the world right now!

To access the forum you have to log in!  Remember the password?

You have to then log in to the forum individually. The forum is a resource for us – instead of having to post the question to the secretary and wait for her to send it out, we can speak directly to each other. We on the board encourage you to use this resource as a way of sharing experience and knowledge.

Can’t wait to see you on the forum section!


  • Geraldine Dunne - 17th March 2016

    Hi everybody
    Does anybody have any experience of using Abatacept (Orencia) SUB CUT ?

    A 6 year old child with LRBA deficiency has it IV but will start SC soon. In Australia, it is not licensed for children so the manufacturer will not provide any information to me.

    Is there any specific information anybody can share, either about it’s administration or side effects including local injection site reactions ?


    • Marie-Claude Levasseur - 21st March 2016

      Hi! I know it is license in Canada for children’s . I never had the chance to use it .. Never heard bad comment about it..when I asked if it was more painfull than another sc, the rep said no.

      • Geraldine Dunne - 1st April 2016

        thank you

        is there anybody in this group from Canada please ?
        that would be very helpful


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