Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public…
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At a recent meeting, the Director-General of the World Health Organization (WHO) announced that 2020 will the Year of the Nurse, celebrating nursing and midwifery! The proposal was formally put forward at the meeting by a representative from Jamaica, supported by representatives from Australia and Eswatini. The Executive Board burst…
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This month we hear first hand from Helen Braggins who works at great Ormond Street Hospital for Children and who is the Society Clinical Nurse Specialist for Chronic Granulomatous Disorder (CGD). I was particularly interested in the research work that Helen is currently involved in. read on for details……
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Late last year I wrote a short piece to welcome the newest INGID board members onto the ‘team’. To expand on that, the board thought it might be useful and interesting for INGID members to have a little more information on what the board do and how INGID is run….
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Please note that we are currently experiencing a glitch with our on line applications. Usually, we are notified when an application has been submitted but currently, this is not the case..but we are working on it. If you so apply for renewal or initial membership, please contact one of the…
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