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INGID supported UKPIPS 27/2/2016

Monday, 7 March, 2016

UKPIPS ran a hugely successful educational day on the 27/2/16 for patients and carers living with Primary Immune Deficiency. The education day took place in South London and was targeted to patients and carers who receive treatment from London and South-East based hospitals.  For UKPIPS this was their most successful…

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10 signes cliniques d’alerte d’un déficit immunitaire primaire, en français!

Wednesday, 2 March, 2016

  L’Association des Patients Immunodéficients du Québec a récemment publié son affiche sur ”Les 10 signes d’alerte d’un déficit immunitaire primaire”. Cette publication fait partie d’une démarche impressionnante de l’organisme pour faire connaître la pathologie, augmenter le dépistage et offrir de l’information de qualité aux patients du Québec.  D’autres activités…

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Primary Immunodeficiencies in the spotlight

Friday, 26 February, 2016

The sixth ​World Primary Immunodeficiencies Week will take place from the 22nd-29th April 2016. World PI Week is part of a global campaign to raise awareness, improve diagnosis and treatment and to provide information and support to people with primary immunodeficiencies, their families and carers and the health care workers who…

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PHE screening UK NSC stakeholder conference

Tuesday, 23 February, 2016

Blog – PHE screening 09-02-2016 09:46 AM GMT The first UK National Screening Committee (UK NSC) stakeholder conference took place in December. This inaugural event was attended by 100 stakeholders and we were delighted with feedback. My colleague, Nick Johnstone-Waddell, has already blogged about the day and those of ……

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