News

Gene therapy : new and emerging treatment for some living with PID

Wednesday, 2 October, 2019

Immunologist Janine Reichenbach is undertaking research into serious congenital immune deficiencies. And she is developing gene therapies – for some patients the last hope of a cure   As more and nore of our pateints may undergo this therapy, the following link may provide some useful insights: https://www.news.uzh.ch/en/articles/2019/Immunologin-Reichenbach.html

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WHO acknowledges essential diagnostics for PIDs

Wednesday, 2 October, 2019

Primary immunodeficiency (PID) diagnostic tests have been included in the World Health Organization (WHO)’s Essential Diagnostics List (EDL) published by WHO on July 9, 2019. The inclusion of PID diagnostics tests follows a successful joint application by IPOPI and IUIS (International Union of Immunological Societies) which was supported by numerous other organisations…

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INGID Brussels 2019 highlights

Wednesday, 2 October, 2019

    Thank you to the 40 nurses who registered for the INGID programme in Brussels this year. We hope you enjoyed it as much as we did. For those of you who were unable to attend, here are a few snippets and Images. INGID enjoyed an insightful and sensitive…

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Jeans for Genes 2019

Monday, 2 September, 2019

Jeans for Genes day is celebrated in various parts of the globe during the months of August- September. It was established to fund revolutionary research that helps diagnose, understand, and find cures or treatments for conditions affecting children, including genetic diseases. 1 in 20 children is born with a genetic…

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