The presentations below have been collected over the years from different conferences, meetings and events attended by INGID members. Simply select a topic to see all the related presentations, and click on the ‘download’ button to view a presentation.
Please feel free to download, save and share the presentations with your colleagues or your team. If you would like to submit a presentation or have any feedback, please contact us at gaby.strotmann@med.uni-muenchen.de
Global Care of a child with SCID in the pediatric Immuno-Hematology-Rhumatologie unit (Prise en charge globale d’un enfant porteur d’un SCID dans l’unitè d’immuno-hèmatologie pèdiatrique)
Pr. Alain Fischer (Istanbul, Turkey 2010)
DownloadAlienation and PTSD in children and families with SCI
Dr. Peter Vickers (Budapest, Hungary 2006)
DownloadAlienation and PTSD in children and families with SCI
Dr. Peter Vickers (Budapest, Hungary 2006)
Prognostic Factors for Improved Health-Related Quality of Life in Children and Adults With Primary Antibody Deficiencies
Uwe Nicolay & Ann Gardulf (Budapest, Hungary 2006)
DownloadWhat is patient satisfaction and what can we do about it?
Dr. Andrew Thompson (Budapest, Hungary 2006)
DownloadImproved Quality of Life with Home Therapy with subcutaneous immunoglobulins for patients with secondary hypogammaglobulinaemia
Marie-Claude Levasseur & Elie Haddad (Florence, Italy 2012)
DownloadAdults with selective IgA deficiency – Health-related quality of life (HRQL) & Risk factors for poor HRQL
Guðmundur Jorgensen & Ann Gardulf (Florence, Italy 2012)
DownloadImmunology Advanced: The Genetic Pathophysiology Of Primary Immunodeficiency Disorders (PIDs)
Dr. Peter Vickers
Immunity & Children — The Developmental Changes in the Immune System from Birth to Adulthood
Dr. Peter Vickers
Long term safety of Infliximab in CVID related inflammatory bowel disease
Dr Nisha Verma, Department of Immunology, Royal Free Hospital, London
World PI Week (WPIW)
Carla Duff, CPNP MSN CCRP IgCN, INGID Assistant Secretary, Member of the PI Week Steering Committee
A single centre audit of home visit outcomes in PID patients self-infusing immunoglobulin
Emily Carne, Advanced Nurse Practitioner, Immunology & Allergy, University Hospital of Wales
The Netherlands
Marianne van der Ent, Jolanda van Esch, Riet Strik Albers, Dutch Nursing group for Immunodeficiency (LW-VID)
Nurse´s Role In Caring For PID Patients In Slovenia
Maja Čamernik, RN, University Children´s Hospital Ljubljana, Dpt. of Allergology, rheumatology and Clinical Immunology
The role of the nurse in immunologie in Canada
What a nice job! Marie-Claude Levasseur inf. B.Sc, D.E.S.S Bioethic
Pediatric nursing to children with primary immundeficiency
The role of the immunology nurse regarding education, guidance and the follow up of patiens with primary immundeficiancy
Kathleen Halvorsen. RN., The division of Paediatrics, Rikshospitalet, University Hospital, Oslo, Norway
DownloadSubcutaneous Administration of Gammanorm® in Immune-Deficient Patients by Rapid Push: Report of the Belgian Experience
A. Reniers, C. Heijmans, N. Nols, R. Rombaut, R. Peche (Belgium), Ingid Programme
Immunology Nursing in Australia
Geraldine Dunne BSc (Hons) RN, Clinical Nurse Consultant, Department of Immunology & Infectious Disease, Sydney Children’s Hospital, Randwick, Sydney, Australia
The History of INGID
1994 – 2014, 20 years of PID nursing development, collaboration and friendship
The Future of Immunology New Therapy Options
William Blouin, MSN, ARNP, CPNP, Miami Children’s Hospital
IVIg for non PID uses
Christine Symons, MSc, BA (Hons), PGCE, RGN, V300, Nurse Consultant, Derriford Hospital, Plymouth
Fran Ashworth
Senior Immunology & Allergy Nurse Specialist, RGN, Dip. Counselling HCP., BA (Hons) Health care Practice, MSC Health care & Social Practice
SCIg vs IVIg: Let’s Give Patients the Choice!
Marie-Claude Levasseur inf. B.Sc, D.E.S.S Bioethic, Immunology-Rhumatology
Adherence & chronic illness (Medication nonadherence in the hemato-oncology)
Barbara Gresch, MScN, RN
Immunity & Children, The Developmental Changes in the Immune System from Birth to Adulthood
Dr. Peter Vickers
Development of National Guidelines for Immunoglobulin Therapy
M. Elizabeth M. Younger CRNP, ph.D, The Johns Hopkins University, Baltimore, Maryland
Immunology nursing in the Czech republic today
Teplá Ilona, Králíčková Pavlína, Institute of Allergy and Clinical Immunology University Hospital Hradec Kralove, Czech Republic
The work of nurses at the Immunology Institute ward
Bc.Dita Růčková, Charles University Immunology Institute 2nd Medical Faculty and University Hospital Motol
University PID/SID Education for Nurses
Ann Gardulf, RN, PhD, INGID member, Bengt Steger, RN, Chairman of The Swedish PID Nursing Organisation
PI CONNECT: Melding Two Databases To Guide Research And Outcomes Measurements In Patients With Primary Immunodeficiency
Marcia Boyle, President & Founder, Immune Deficiency Foundation, Elyse Murphy, Medical Science Liaison Leader, Immunology, CSL Behring
Pediatric nursing to children with primary immundeficiency
The role of the immunology nurse regarding education, guidance and the follow up of patiens with primary immundeficiancy
Kathleen Halvorsen. RN. The division of Paediatrics, Rikshospitalet University Hospital, Oslo, Norway
DownloadImplementing a Patient-Led Support group for patients with immunodeficiency at Papworth Hospital, Cambridge
Karen Henderson (Istanbul, Turkey 2010)
DownloadBug & Superbug (with apologies to George Bernard Shaw)
Dr. Peter Vickers (‘s-Hertogenbosch, The Netherlands 2008)
DownloadIncreasing awareness of PID worldwide: Workshop by ESID-INGID-IPOPI
Esther de Vries & Anna Sediva (Florence, Italy 2012)
DownloadComparison of respiratory health status in adults with CVID and Idiopathic bronchiectasis
Lorraine Ozerovitch (Florence, Italy 2012)
DownloadEducation of patients with primary hypogammaglobulinemia for S/C Ig self-administration
R. Laumond, J. Baron Lysio, M-L Doizé (Budapest, Hungary 2006)
DownloadSubcutaneous Immunoglobulin Therapy: A new way of permanent treatment in primary immunodeficiencies
Gaby Strotman (Budapest, Hungary 2006)
DownloadExtended follow-up of home therapy with Hyaluronidase-facilitated subcutaneous immunoglobulin (fSCIg)
Caroline O’Grady (Istanbul, Turkey 2010)
Importance of Ancillary Supplies for Subcutaneous Immunoglobulin Infusion: Management of the Local Infusion Site
Diane Ochoa et al. (Florence, Italy 2012)
DownloadUse of Subcutaneous IgG in Patients on Concomitant Anticoagulant and Antiplatelet Therapy
Mark R. Stein et al. (Florence, Italy 2012)
DownloadImproved Quality of Life with Home Therapy with subcutaneous immunoglobulins for patients with secondary hypogammaglobulinaemia
Marie-Claude Levasseur & Elie Haddad (Florence, Italy 2012)
DownloadASID et le traitement par immunoglobulins sous-cutanèes; l’expèreince Canadienne (French & English)
Marie-Claude Levasseur (Florence, Italy 2012)
DownloadEducation of patients with primary hypogammaglobulinemia for S/C Ig self-administration
R. Laumond, J. Baron Lysio, M-L Doizé (Budapest, Hungary 2006)
DownloadSubcutaneous Immunoglobulin Therapy: A new way of permanent treatment in primary immunodeficiencies
Gaby Strotman (Budapest, Hungary 2006)
DownloadExtended follow-up of home therapy with Hyaluronidase-facilitated subcutaneous immunoglobulin (fSCIg)
Caroline O’Grady (Istanbul, Turkey 2010)
DownloadThe value of a nursing review of the PID patient on home therapy with immunoglobulin
Caroline O’Grady (Istanbul, Turkey 2010)
DownloadA Cultural Revolution of immunoglobulin treatment in Children with Immunodeficiency?
Malene Kapper & Anne-Grethe Boje (Florence, Italy 2012)
DownloadHow Did It Happen? An exploration of Genetics and Immunodeficiencies
Dr. Peter Vickers (Versailles, France 2004)
DownloadGene Therapy or Bone Marrow Transplant?
Emily Mullan & Andrea Stephenson (Budapest, Hungary 2006)
DownloadGene Therapy Trials for PID: A Nursing Perspective
Jin Hua Xu-Bayford (Budapest, Hungary 2006)
Download