UKPIPS ran a hugely successful educational day on the 27/2/16 for patients and carers living with Primary Immune Deficiency. The education day took place in South London and was targeted to patients and carers who receive treatment from London and South-East based hospitals. For UKPIPS this was their most successful fifth patient and carers’ event over their four year history, as nearly 100 delegates was in attendance.
The day consisted of both workshops and lectures. There were lectures on: Virtual Home Therapy Training & Assessment; Genomic Research; Living with PID and Respiratory Infections; New methods of delivering immunoglobulin and The NHS in England – how it works, a patient’s rights and responsibilities. The majority of these sessions were presented by members of INGID.
Whereas the workshop based sessions that occurred through the day, patients could choose which ones they wanted to attend: How to tell friends, family and colleagues that you have a PID; How PID affects the gut and how to cope with it; Caring for someone with a PID (Carers only for this workshop); Benefits, Employment and Education issues and PID Caring for your lungs.
Amena Warner, the President of INGID, gave a heart-felt presentation of thanks to Liz Macartney of UKPIPS for their continued collaborative working and presented her with the limited book edition of the “20 years History of INGID”. http://www.ukpips.org.uk/
